A Tale of Two Years; My Fibro Tale

We begin this Fibro Tale two years ago this month…

A Fibro Tale My Fibromyalgia Life StoryLooking back to the beginning of my fibro tale. I don’t believe pharmacy was necessarily the wrong choice for me at the time.

If there’s one thing I’ve learned in the last two years it’s that no two single Fibro-tales are exactly the same. No two sets of triggers are exactly the same.

Every single one of us has a different Fibro tale to tell.

I had tumbled a little too far into the abyss and was dangling by a thread above the danger zone. So, I decided on the shortcut, quicker results to bring me back from the brink, both physically and mentally.

For this reason, I filled the first prescription. Which turned out to be the first of many more to come.  As one might expect given the circumstances, I needed to get “a little bit well” to tackle life head on again. So, I decided I would deal with the consequences later.

I don’t regret my choice other wise, I believe without medicine and the support of my amazing Doctor I might not be here today sharing my Fibro-Tale with you.

After overcoming some uhhhhh shall we call them set backs? A few months ago I finally decided it was time to start putting some of what I’ve learned about the many faces of my fibromyalgia to use. Now that the urgent stuff had been taken care of, time to try some new things.

100 Hand Lettered Inspirational Quotes
* book cover

I have decided to test the waters at decreasing the number of medications I am taking and to introduce some non-pharmaceutical healing “practices” into my life.

Why? I have finally reached acceptance. Two years into the fibro tale that is now my life, I am at last ready to meet the new me.

Until next time…take care my #SpoonieFriends. Please feel better soon. Shelley

PS – Click here for a list of my top 7 Fibro flare triggers. What are yours? Please share.



Another Day Another Dollar

Another Day Another Dollar www.FibroFog.ca…or so my father used to say.  For me it’s more like during a flare; another day another dollar less.  Keep reminding myself that I must stay away from wallowing. These days it’s sooooo tempting to lie in bed and give myself over to the pain. That’d be so much easier than trying to remain upright.

Not going to do it; maybe some other day but not today. Today I will push through the pain, and swim to the surface. On the surface I shall remain!

First I’m going to pacify myself with a teeny tiny bit of complaining. I have laryngitis right now. That’s not the problem. The inability to speak above a whisper and the aching vocal cords are more of an annoyance than terribly painful. The problem is that, more than likely this is just a precursor of more fun things to come… those my friend are problems for another day.

Today I want to give a bit of an update. Last spring I ranted about an absolutely awful experience I’d had when applying for a government program. I won’t get into it except to say that it was so stressful I ended up spiraling deep into a flare. I have a hard time letting it go. Thinking about it is too upsetting. That was another day; a dark day.

It took months but I finally built of the courage to look into the program one more time. Glad I did because my most recent meetings went very well, and things have started to move forward. Slowly, but moving forward none the less.

I’ve met and will be working with two wonderfully supportive, empathetic, strong women. Things are moving forward and I hope to have really great news soon.

That’s for another day, though ….

Today I celebrate because I finally finished typing this and am about to hit publish 🙂

Gently hugs spoonie friends.

 Stop Snoring Today!

Summer Sure BLASTed By

Didn’t Summer Just Start?

I can not believe it’s been three months since my last FibroFog post. Wow! Where does the time go?

In spite of multiple lengthy and sucky flares, I really have had a blast this summer. I sure hope you all did too.

Family Summer Outing First Roller Derby Scrimages These last three months for me, have been about enjoying my hubby, my daughters and my community.  It’s been about going new places, meeting new people and trying new things.  It’s been about self-discovery.

Did I have you going there for a minute? Of course I didn’t try roller derby, silly.

The hubby, kids and I did however get out and enjoy watching our first ever live roller derby event. Thanks for having us Candy Crushers!

Believe me I was tempted, quite a few times this summer to just give in to the pain. It was bad, a lot of time on crutches. More than once I contemplated backing out of our daily adventures (#StayCay with kids & hubby) but I didn’t.

Blouin Family StayCay Summer 2015I’m glad I didn’t. In fact, not once did I regret pushing myself out the door. I am lucky. My family believes me. Even though they can’t see my illness, they accept that it is real.

When I could walk, we walked. When I needed crutches we drove further and walked less. We explored around my fibromyalgia flare ups, and for that I am so very very grateful!

What a fantastic idea my husband had that the four of us staycation together this summer. Perfect for a limited financial budget and a limited supply of physical energy too!

Shelley Lockwood Original Art www.FibroFog.ca

Hey fellow Spoonies got Twitter? Let’s get social…www.twitter.com/fibrofog

______________

 

Hickies Laceless Shoe System from Vat 19
Transform any lace-up shoes into slip-ons

Chronic Pain is a pain in the butt!

I got dem’  Chronic Pain blues

Arggg! Don’t want to jinx it but I think I’m finally putting my latest flare behind me. This was a tough one; I’m talking widespread chronic pain everywhere. Even had to use crutches to get around.

When I was a kid I had to use crutches for a few years. They were like second nature to me…then again so were the painful palms and chaffed under arm areas from using them. I remember thinking…man I hope I never have to use those again.

Here it is thirty something years later. Turns out I did and quite likely will have to again. Silver lining? Seems using crutches is like riding a bike, no matter how long it’s been you don’t forget how to use them. Well, I didn’t anyway.

Enough about my latest go round with chronic pain, how about a little time out for some happy thoughts? Hmmm ok, here are two…my new flamingo ladies that hubby bought me and Buck the guinea pig helping me out with some typing 😉

Being silly sometimes helps me cope with chronic pain
Cheers!
Chronic pain distraction provided by Buck the guinea pig
Buck my typing assistant

So I guess what I’m getting at (or trying to anyway) is that though chronic pain is an everyday part of life at least the flares come and GO. There is always some kind of relief (or reprieve) on the horizon.

In the meantime I find that it’s sometimes the silliest things (like my ladies above) that can take your mind of the chronic pain and make you smile for at least a little while.

Just a few of my nifty thingys
Just a few of my nifty thingys

Hmmm…that makes me wonder, is it possible that my husband and kids realized this before I did?

Lately I’ve been getting some really nifty, silly n’ fun gifts. My desk and shelves are filling up with some interesting goodies that work wonders at distracting me from my constant companion aka “chronic pain”.

My Husband & Daughters make me smile. I really am lucky aren’t I? Right musn’t forget the pets; they make me smile too…

  • Dee Ohh Gee the dog RIP baby boy xox
  • Piggly Wiggly the Queen of skinny pigs
  • Skuttle Bug the bunny rabbit
  • Rowena the red eyed guinea pig
  • Gopher the sweetest guinea pig EVER
  • Gizmo the squeaker guinea pig
  • Herbert the hedgehog RIP sweety xox
  • Buck the typing guinea pig
  • Bippity Boppity Boo Morgeana George Walter (that’s one name) the skinny pig
  • Crispy Bacon the skinnny pig – for the record I protested this name! RIP miss you xox
  • Pippa our rescue skinny pig was with us a short time but we loved her very much RIP xox

Arthritis; Ain’t Nobody Got Time for That

Arthritis…

(the big A) Fibromyalgia (the big F) and Bursitis (the big B) Oh My!

Mix these conditions together with a few other illnesses thrown in and Taaadaaaa! You’ve got yourself a big old batch of widespread chronic pain. Every minute of every hour of every day of every week is painful.

The only things that change are…

  • What kind of pain (Arthritis, Fibro, Bursitis et al?)
  • Where the pain is (besides your big F trigger points which always hurt)
  • How painful on a scale of 1 to 10

In case you haven’t noticed, I don’t like using words like Arthritis, Fibromyalgia and Bursitis (especially the F word). Thus, the nicknames. It’s a way of pacifying the Me that is still in denial and of kyboshing the anxiety these words cause me.

They suck; they’re painful and can knock you flat on your back for days or even weeks at a time. For the sake of “keeping it positive” though, I’m going to call them FAB (which they most definitely are not!)

Who am I kidding?  There is nothing positive about having an ever growing list of painful, incurable autoimmune diseases. That being said, apparently (or so I hear on a daily basis)

  • staying positive is important (life’s dandy, how could I not?)
  • exercise is crucial (especially if you want to set off a flare or two or three!)
  • push yourself but don’t exceed your limits (uh and I know my limits how?)

I swear if one more physically fit person tells me the best medicine for Arthritis and Fibromyalgia is going to the gym I will….well, I’ll probably fake a smile while thanking them for their advice. Like I always do.

Anyway, after my latest visit to the Rheumatologist I realized it was time to finally accept that I do have Arthritis and Fibromyalgia.

Acceptance was the first hurdle. Now I’m going to focus on…

  • Staying upright as much as I can
  • Keep moving for as long as you can
  • My quality of life
  • Increasing my durability

I know I’ll never be the Energizer Bunny® again but I will be the best Me that I can be! After all I am FAB! 

Energizer Bunny Arthritis Post to Amazon