A Tale of Two Years; My Fibro Tale

We begin this Fibro Tale two years ago this month…

A Fibro Tale My Fibromyalgia Life StoryLooking back to the beginning of my fibro tale. I don’t believe pharmacy was necessarily the wrong choice for me at the time.

If there’s one thing I’ve learned in the last two years it’s that no two single Fibro-tales are exactly the same. No two sets of triggers are exactly the same.

Every single one of us has a different Fibro tale to tell.

I had tumbled a little too far into the abyss and was dangling by a thread above the danger zone. So, I decided on the shortcut, quicker results to bring me back from the brink, both physically and mentally.

For this reason, I filled the first prescription. Which turned out to be the first of many more to come.  As one might expect given the circumstances, I needed to get “a little bit well” to tackle life head on again. So, I decided I would deal with the consequences later.

I don’t regret my choice other wise, I believe without medicine and the support of my amazing Doctor I might not be here today sharing my Fibro-Tale with you.

After overcoming some uhhhhh shall we call them set backs? A few months ago I finally decided it was time to start putting some of what I’ve learned about the many faces of my fibromyalgia to use. Now that the urgent stuff had been taken care of, time to try some new things.

100 Hand Lettered Inspirational Quotes
* book cover

I have decided to test the waters at decreasing the number of medications I am taking and to introduce some non-pharmaceutical healing “practices” into my life.

Why? I have finally reached acceptance. Two years into the fibro tale that is now my life, I am at last ready to meet the new me.

Until next time…take care my #SpoonieFriends. Please feel better soon. Shelley

PS – Click here for a list of my top 7 Fibro flare triggers. What are yours? Please share.



Summer Sure BLASTed By

Didn’t Summer Just Start?

I can not believe it’s been three months since my last FibroFog post. Wow! Where does the time go?

In spite of multiple lengthy and sucky flares, I really have had a blast this summer. I sure hope you all did too.

Family Summer Outing First Roller Derby Scrimages These last three months for me, have been about enjoying my hubby, my daughters and my community.  It’s been about going new places, meeting new people and trying new things.  It’s been about self-discovery.

Did I have you going there for a minute? Of course I didn’t try roller derby, silly.

The hubby, kids and I did however get out and enjoy watching our first ever live roller derby event. Thanks for having us Candy Crushers!

Believe me I was tempted, quite a few times this summer to just give in to the pain. It was bad, a lot of time on crutches. More than once I contemplated backing out of our daily adventures (#StayCay with kids & hubby) but I didn’t.

Blouin Family StayCay Summer 2015I’m glad I didn’t. In fact, not once did I regret pushing myself out the door. I am lucky. My family believes me. Even though they can’t see my illness, they accept that it is real.

When I could walk, we walked. When I needed crutches we drove further and walked less. We explored around my fibromyalgia flare ups, and for that I am so very very grateful!

What a fantastic idea my husband had that the four of us staycation together this summer. Perfect for a limited financial budget and a limited supply of physical energy too!

Shelley Lockwood Original Art www.FibroFog.ca

Hey fellow Spoonies got Twitter? Let’s get social…www.twitter.com/fibrofog

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Minecraft a Virtual Playground

Playing in Minecraft Digital Dirt

“When I was a kid, I used to spend hours playing in a little dirt patch in our backyard. I’d build cities with roads for my toy cars, rivers for boats, you name it. My kids do the same thing today. They just do it digitally, through Minecraft”. Excerpted from Danny’s Post Minecraft & Learning To Love The Digital Sandbox For Your Kids  

Minecraft PlaygroundMy response..Great way to look at it! My 13 year old is absolutely crazy about Minecraft. I admit that I have had my concerns. Now that I’ve read your post, I’m looking at it from a different perspective. She is creative and determined to succeed with each venture, building or project. She finishes the job, and then sets the bar higher for her next challenge. She has learned to plan ahead and face unforeseen obstacles. I like your “sandbox play” comparison and think that you’re bang on.

Recently the four of us were on a family outing. My husband and I attempting to cajole our two teen daughters into a conversation. One daughter was busy chuckling at something someone (who wasn’t in the car) just said, so we tried the other. The next attempt fell short as the 13 year old popped an earphone out, quite annoyed by the interruption.

I was thinking that teens today build social lives in a virtual world. They’re doing the same as we did, hanging out with a friend or friends. Just not in person. Often I’m cooking supper while talking to three or more kids, only two of which are actually in my kitchen.  Took some getting used to but these days I rarely jump when an invisible kid talks to me from what I thought was an empty room.

This is their life, these are their teens. These will be the stories that start with…”When I was a kid”…

I have decided I want to be a part of this time in their lives. So, I listen and I learn. When she shows me her latest Minecraft creation, I am proud of the effort she put into it. I ask questions, each time learning a little bit more.

When my eldest brings someone “virtually” for supper or to watch a movie I talk to them as if they are in the same room.

I’m ok (as long as they are careful) with them hanging out in a Minecraft or social media digital park just like I did in a grass, sand and dirt park all those years ago.

Take care! Shelley

Warning! Friendship Erosion in Progress

But first…let me tell you a story about friendship

I found myself always wanting to crawl back into bed and turn it into my own little dark comfy n’ cozy cocoon. My only company in the room a huge cup of coffee, my dog and the TV.  I’d nap whenever I need to, which is pretty much always. I’d only get up to…ummm eliminate the last coffee I drank, and of course to make myself a new one.

Friendship was pushed way back into the deepest recess of my mind.

Lucky for me, there’s pretty much always someone wanting something. Be it the guinea pigs whistling for me, the dog woofing at me, the hubby hinting to me or the kids asking outright, someone needs me for something. Even when they’re not here, there’s always something that has to be done. I know it may sound odd, that things like cooking, making lunches, doing the laundry or cleaning the guinea pig cage help me, but they do. They give me purpose.

Our slightly loud, often chaotic household and the lives within it are what I get up for. Day after day they are what make me push myself to stay upright. Completing even a small task (though it usually feels enormous) gives me a sense of accomplishment.

Going to my mother’s for our weekly supper, not only gets me to dress a little nicer there’s conversation and I get cooked for! Thanks Mom! Groceries…wipe me out, but they also get me out. School & Hubby’s schedule get me up early but most importantly they get me up.

It’s been a bad two months; plain and simple! A great deal of energy (which left very little for other things) has gone into staying upright. Every waking moment has taken intense effort to stay just that; awake. I was struggling to find joy of any kind.

Then, a friend helped turn it all around. I’m not sure if she did it intentionally or just that her timing was impeccable, but either way she really helped me.

During my latest downward spiral she popped by my place. Which lead to multiple phone calls, a quick visit or two at her work, she visited bringing coffee, goodies and sewing stuff. We went shopping, nothing huge but it’s all been really enJOYable, every minute of it.

Awhile back we both developed health issues and circumstances changed. We stayed in touch and managed a few outings to our favourite store, yummy lunches and uh let’s call it “camping”. What we didn’t do was spend nearly as much time together as we used to. We knew we could count on the other, the friendship was there but our time together had dwindled.

Pledge of Friendship Poster
Pledge of Friendship

I think “frequency” is the word.  As we began to spend more time together I began to feel better.  The other day, I didn’t get dressed and I just wanted to crawl back into bed. She somehow pulled off gently nudging me to get up and get ready. Before I realized it she had me going out the front door. I enJOYed my day and we have plans for our next outing!

Things are a little brighter right now. I don’t have to waste my limited energy fighting the urge to crawl back into bed. A little each day I’m regaining my optimism. I’m starting to feel JOY again and my smile is growing more and more genuine.

Thank you so much JC for being my friend xox! Our friendship means the world to me.

New Happy Pages

Yes I vent about many a negative thing here on FibroFog.ca. I mean let’s face it I’m talking about a growing list of Autoimmune Disorders on a regular basis. Where’s the Happiness in that?

New Happy Pages Colourful Twister
Sometimes Feels Like LIFE is Spinning Out of Control

I am doing my best to stay a “glass half full” person, but it’s tough.

That being said….turns out this new Life I’m to Learning to LIVE has some silver linings. I’m rediscovering forgotten interests, expanding and discovering new ones. I am spending more time with the kids enjoying shared interests like art and movies.

As a FAMILY we are going to comic book themed movies, watching TV Shows like Marvel Agents of Shield and enjoying memorabilia (especially Funko POP).

new comic book characters like Baby Groot
Funko POP Vinyl Baby Groot came home on Monday with VicyB

Sorry got carried away.  My intent was to quickly let you know that I am now adding a new happy section to the blog.

PS Happy Friday! Have a super duper fun filled minimal pain weekend!!