New Happy Pages

Yes I vent about many a negative thing here on FibroFog.ca. I mean let’s face it I’m talking about a growing list of Autoimmune Disorders on a regular basis. Where’s the Happiness in that?

New Happy Pages Colourful Twister
Sometimes Feels Like LIFE is Spinning Out of Control

I am doing my best to stay a “glass half full” person, but it’s tough.

That being said….turns out this new Life I’m to Learning to LIVE has some silver linings. I’m rediscovering forgotten interests, expanding and discovering new ones. I am spending more time with the kids enjoying shared interests like art and movies.

As a FAMILY we are going to comic book themed movies, watching TV Shows like Marvel Agents of Shield and enjoying memorabilia (especially Funko POP).

new comic book characters like Baby Groot
Funko POP Vinyl Baby Groot came home on Monday with VicyB

Sorry got carried away.  My intent was to quickly let you know that I am now adding a new happy section to the blog.

PS Happy Friday! Have a super duper fun filled minimal pain weekend!!

Dear Spoonie Friend,

Sorry I haven’t written lately…

but I’m trapped in this never ending nightmare. I can’t work, I can’t sleep, I can barely type at all. This latest Fibro-flare is really packing a punch. The pain at night is unbearable. I can’t shake the brain fog so…

Spoonie Friend Fibro-Flare

When I explain why I haven’t written sooner… you will understand my Spoonie friend.

Now if I wrote that in a letter to the average person, we all know what they’d be thinking….

“she looks fine”

“she’s just negative”

“she’s always claiming to be sick”

“she’s just making excuses”

You see it in their eyes when they look at you and so I am often dishonest about the way I am feeling. When asked how I am I usually respond with “fine and you?” I rarely let them know  that I’m in a disabling amount of pain All The Time.

If I get even the slightest chill it sets off a chain reaction of a deep radiating achy pain, especially at my trigger points.

Speaking of Trigger points,  my hands hurt so intensely that if I bang them even slightly, tears well up in my eyes.

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I could sing the Fibromyalgia, Arthritis, Interstitial Cystitis, Graves Disease, Previously Hyper but now thanks to radiation Hypoactive Thyroid, Gout, Psoriasis, Chronic Pain, Chronic Fatigue, Depression, Autoimmune Disorders Blues and they would never get it.

You my Spoonie Friend, you know what it’s like. You understand the pain and illnesses we share are not invisible to us.  They are physically very very REAL and I understand you.

We get it. We get each other.

This is a letter of thanks…Thank you Spoonies for being in my life.  I am grateful for each and every one of you.

I wish you days filled with so many spoons you can’t count. May your spoons runneth over.

Full Spoons for Spoonie Friends
Epices at Cuilleres

Take care, Shelley


Tweet this pwetty pwease

Warning! Shark Infested Waters!

Don’t Take Insurance Coverage for Granted…

For the sake of conversation, let’s say you have developed a chronic illness.  Let’s use Fibromyalgia for example.

Life as you’ve know it is about to change FOREVER,  but there’s at least one silver lining…you are working and have long term disability insurance.

As time progresses and the Fibromyalgia symptoms get worse you physically can’t work.  You have insurance so you can focus on learning how to LIVE with a chronic illness and how to manage your chronic pain.

It is a very stressful and emotional time, but at least you have insurance so finances for the time being are not a worry.

First to do….acceptance. It isn’t easy coming to terms with and accepting that you have a chronic condition. It’s a huge part of learning to LIVE this new life you’ve been handed.

So while you’re struggling physically  and emotionally you get a call from this woman. OK so I’m actually talking about me and it’s a true story….

Sharks aka Insurance Companies
David Jenkins Great White Shark

Apparently she is being sent by the insurance company. I’m lucky enough to have qualified for some extra help like physiotherapy and one on one time with a Kinesiologist.

Long story short – this woman put me through the ringer.  She was mean. She threatened me more than once about her 25 years of experience going to court.

She said she doesn’t believe in Fibromylagia. It’s just a label she says for fortysomething women who have burned themselves out doing too much for too long…ummmm? Wasn’t sure what to reply during that conversation.

I get sent for two days of testing called a Functional Capacity Evaluation. The gentleman seemed nice . Seemed like he really wanted to help and was remaining non biased. I’ll save clarifying my use of the word “seemed” for another day.

How ridiculous does this sound? I kid you not……

Phone call from insurance company, “we got the test results”. She starts reading them to me:

  • Standing 30 to 45 minutes at a time with opportunity for rest breaks as needed
  • Minor amounts of level walking up to 6 minutes at a time
  • Bending/stooping minimize avoid stooping with the exception of very occasional mild repetitive and/or prolonged stooping
  • Crouching/kneeling restrictions from performing this action
  • Climbing ability to perform on a rare basis
  • Strength Pushing, pulling, lifting and/or carrying limited demands only (avoid more than occasional strength activities)
  • Lifting bilateral 10 lbs on an occasional basis
  • Lifting unilateral 3 lbs left arm, 5 lbs right arm
  • Carrying bilateral 10 lbs on an occasional basis

With each thing that she reads, my heart sinks more and more. I am not happy about not being able to work. I miss my job, I miss my customers, I miss my team.

My husband is hearing this from the other room.  He’s thinking the same thing as me. This news sucks!

Here’s where it becomes laughable (well it would be if it wasn’t such a serious matter).  “Good news” she says.  I swear as God is my witness that’s what she said. I’m thinking what? My husband actually says out loud “WHAT?”

How is this good news? Wait for it….and the punchline is….

“You can go back to your occupation as a retail manager”.  We’ll pay you for December & January while you look for a job.

PS- Wow I’ve been typing this post since Jan 16th.  FYI test results were that I was able to type for 9 minutes of 30 the first day and 6 minutes on day two.

Thanks for the Support

The Great Big Thanks For Your Support!

I’ll keep it short. Two things…

Thank you all for your support! It means so much to me! LIVING with Fibromyalgia can be quite the ordeal. Visitors to my blog really make a difference.

Just wanted to let you know I’ve added a page that explains a bit about how I make money when someone purchases through one of my FibroFog affiliate links.

Again, thank you! I really appreciate it when you visit retailers and make purchases through my links.

 I leave you with a laugh from Vat 19

Support FibroFog buy the original beardo hat

Check Out Videos of Our Most Popular Items… Feel The Peer Pressure! Visit CrayCray.FibroFog.ca 

Distractions, Distractions, Distractions

I’m having one of those days, where I can’t quite keep up with my thoughts nor can I stay on track.  As I’m tackling one task, another pops into my mind which seems like more of a priority. So, then I flip to that one. While on the way to tackle the latest task (not having completed the other) I stumble across a couple more distractions.

I stop in mid track and change direction. Happens to the best of us, right?

Distractions of the Great. New Yorker Cartoon Print Available

Distractions of the Great. New Yorker Cartoon

  Distractions of the Great

Published November 10, 1986
Each of four is thinking about something other than their art: Jane Austen, about her upcoming haircut; Verdi, about chocolate cake; Matisse, of a cat; Mme. Curie, of a beach scene.

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Sure we all get distracted and wander off track, to a degree but this inability to focus is way beyond normal. It is so frustrating not being able to get a grip on my thoughts; to keep them focused on just one thing.

It’s like I’ve lost yet more of me to Fibromyalgia.

Some of my greatest professional (and personal) attributes have weakened…

  • quick decision making
  • being able to multi-task
  • prioritizing
  • staying focused

Many days I’m able to reel it in, this ever wandering mind of mine.  Some days, like today though the distractions win out. I get frustrated and upset at not being able to stay on track. So many tasks get started and nothing gets completed. The more frustrated I get, the more easily diverted I am.

Until it becomes almost unbearable and then the exhaustion sweeps over me. You’d think that with the fatigue my mind would slow down, but it doesn’t.

Now I’m stuck with a racing mind, so many ideas, so much to do and I have no strength left. Sleep is not really an option because my mind won’t let me.

So here I sit as I continue trying to PUSH through this entry about distractions that I’ve been trying to finish for what feels like forever.

Classic You Are Here Galaxy Space Science Poster Print
  Ha ha friendly reminder to self…