A Tale of Two Years; My Fibro-Tale

We begin this Fibro-Tale two years ago this month…

Ups n' Downs My Fibro-Tale BookI don’t believe pharmacy was the wrong choice.  In the beginning for me, that is.

If there’s one thing I’ve learned in the last two years it’s that no two single Fibro-tales are exactly the same. No two sets of triggers are exactly the same. Every single one of us has a different Fibro-tale to tell.

I had tumbled a little too far into the abyss. I was dangling by a thread above the danger zone. I decided on the shortcut, quicker results to bring me back from the brink, both physically and mentally.

I filled the first prescription of many more to come. I needed to get “a little bit well” to tackle life head on again. I decided I would deal with the consequences later.

I don’t regret my choice. I believe without medicine and the support of my amazing Doctor I might not be here today sharing my Fibro-Tale with you.

After overcoming some uhhhhh shall we call them set backs? A few months ago I decided it was time to start putting some of what I’ve learned about the many faces of my fibromyalgia to use. Now that the urgent stuff had been taken care of, time to try some new things.

100 Hand Lettered Inspirational Quotes
* book cover

I have decided to test the waters at decreasing the number of medications I am taking and to introduce some non-pharmaceutical healing “practices” into my life.

Why? I have finally reached acceptance. Two years into the fibro-tale that is now my life, I am at long last ready to meet the new me.

Until next time…take care my #SpoonieFriends. Please feel better soon. Shelley

PS – Coming soon… Prequel to A Tale of Two Years; My Fibro-Tale. Like and follow on Facebook http://FBPage.FibroFog.ca so you don’t miss it 😉

PPS – Click here for a list of my top 7 Fibro flare triggers. What are yours? Please share.

Summer Sure BLASTed By

Didn’t Summer Just Start?

I can not believe it’s been three months since my last FibroFog post. Wow! Where does the time go?

In spite of multiple lengthy and sucky flares, I really have had a blast this summer. I sure hope you all did too.

Family Summer Outing First Roller Derby Scrimages These last three months for me, have been about enjoying my hubby, my daughters and my community.  It’s been about going new places, meeting new people and trying new things.  It’s been about self-discovery.

Did I have you going there for a minute? Of course I didn’t try roller derby, silly.

The hubby, kids and I did however get out and enjoy watching our first ever live roller derby event. Thanks for having us Candy Crushers!

Believe me I was tempted, quite a few times this summer to just give in to the pain. It was bad, a lot of time on crutches. More than once I contemplated backing out of our daily adventures (#StayCay with kids & hubby) but I didn’t.

Blouin Family StayCay Summer 2015I’m glad I didn’t. In fact, not once did I regret pushing myself out the door. I am lucky. My family believes me. Even though they can’t see my illness, they accept that it is real.

When I could walk, we walked. When I needed crutches we drove further and walked less. We explored around my fibromyalgia flare ups, and for that I am so very very grateful!

What a fantastic idea my husband had that the four of us staycation together this summer. Perfect for a limited financial budget and a limited supply of physical energy too!

Shelley Lockwood Original Art www.FibroFog.ca

Hey fellow Spoonies got Twitter? Let’s get social…www.twitter.com/fibrofog

______________

 

Hickies Laceless Shoe System from Vat 19
Transform any lace-up shoes into slip-ons

Dropping the F Bomb

There it was again…the “F” bomb and from a second Doctor no less. I had no idea what this fibrowhatchyamacallit was, but figured I should probably read up on IT. It would have to wait until later.

More importantly, I had to get back to work. Pushed through the fog while dragging my invisible cement blocks, painted my smile on and headed back in.

Fibromyalgia Search Results
Fibromyalgia Search Results

Later that night, I sat down (finally) to read up on IT. Wasn’t sure of the spelling, so I started with Fibro, sure enough there it was Fibromyalgia.

Read through the Mayo Clinic info. Everything was bang on but I knew better. Both Doctors were quite simply mistaken and that was that.

I pushed on…funny how a word becomes part of your life PUSH. I had to push myself to get up in the morning. For that matter I had to push myself to get up off the couch to go to bed. I had to push myself to get through pretty much anything and everything. The littlest things would zap me.

By each afternoon rolled around, I could hardly walk. My brain was so foggy I could hardly talk (sensibly that isJ ). My hands had become my enemy. As if burning, aching, and stinging wasn’t enough; they stopped listening to me and kept dropping things. It’s still difficult trying to describe the pain. Best I can come up with is, as the day progressed so would the pain. It would spread until every inch of my skin was hurting.

I had to visit my Doctor wayyyy too frequently. Rather than accept the “F” word I started to believe I was becoming a hypochondriac. That I could fix, Fibromyalgia I couldn’t. Every day there was a new pain in a new place. Every night I got less and less sleep.

Then life became unbearable. There was no pleasure, only pain. I had no choice, I finally accepted that I had the “F” word (doesn’t mean I have to say IT). After acceptance I was able to begin learning how to LIVE with Fibromyalgia.

Every day I am learning to accept that I have limitations. I have to figure out what they are, sometimes the hard way. This month was a major set back, but that’s ok it’s almost over.

As the saying goes….this too shall pass.  I’m back on the right path again.

Claude Monet AllPosters
Claude Monet Print from www.AllPosters.com

 

 

Stressed to the max

It’s like a never ending loop…get stressed, get sick, get sore, become more stressed, become sicker, become more sore.  Then rinse and repeat. The more I’m stressed, the less I sleep, the more likely I am to get sick. I know  it, I live it, I have accepted it and over the past year I’ve become better at dealing with it.

I had made so much progress physically and emotionally and then Wham!  Out of what seems like nowhere, suddenly it’s like I’m living a nightmare. I’m stressed to the max, I’m hurting, I’m not sleeping and now I’m sick. I’m only human and I have my limits.

Hopefully Monday & Tuesday will be a turning point and I will be able to get back on track.  Back to healing, back to learning to LIVE a new way and maybe even back to smiling again.

K
Picture from Allposters.com

In spite of everything I have met some new people that are genuinely kind and are doing their best to help me.  For that I am grateful.